WASHINGTON D.C. – Today, Senators Cynthia Lummis (R-WY) and Tim Kaine (D-VA) introduced a resolution to recognize September 15th as International Myotonic Dystrophy Awareness Day. Myotonic Dystrophy (MD) is a genetic disease that causes progressive muscle deterioration. A rare disease, MD affects one in 2,100 people or 3.6 million people worldwide. There is no known cure for this disease.
“Those that suffer from rare diseases such as Myotonic Dystrophy may feel isolated, like no one understands what they are experiencing. International Myotonic Dystrophy Awareness Day draws attention to this devastating disease and pushes for more research to help those afflicted by this condition. Those in Wyoming who suffer from this condition are not alone, and I am proud to join my friend Senator Tim Kaine to bring attention to this disease,” said Senator Lummis.
“Myotonic dystrophy is one of thousands of rare and painful diseases impacting the daily lives of millions of Americans,” said Senator Kaine. “I’m glad to join Senator Lummis in bringing awareness to the importance of accelerating research and enhancing quality of life for the countless number of Virginians seeking hope.”
“As a member of the Board of Directors of the Myotonic Dystrophy Foundation, a nonprofit organization committed to improving care and finding a cure for myotonic dystrophy, a rare progressive, genetic, inherited disease that affects as many as 1 in 2,100 people in the United States, I applaud Senator Lummis’ steadfast leadership in passing the Senate Resolution honoring September 15th as International Myotonic Dystrophy Awareness Day,” said Joel Revill, Wyoming resident. “Thanks to Senator Lummis, the US is leading the way to change the future of this devastating disease.”
For more information on Myotonic Dystrophy or the Myotonic Dystrophy Foundation, click here.
To read the full resolution, click here.